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Regina's Letter - June 2, 2009

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Date: Tuesday, June 02, 2009 11:53 PM

Dear All,

I am home from hospice and the kids are in bed and now I will try to comment on today.

The Regina Rules was very nice- Thank you, but how about a more Miranda version

Regina Holliday's Rules

1. You have the right to access your medical record without monetary charges. You have the right to an electronic copy of your medical record also without charge. Anything you say or suggest during consultation would enter the medical record. You have the right to review said record with providers of care and make appropriate changes where inaccuracies are found.

2. You have the right to a medical advocate present during consultation. The said advocate could be a family member or friend or professional in the field. If you do not have access to an individual who can act as an advocate, an unbiased advocate will be requested for you.

3. You have the right at any time to stop consultation, and request a second opinion of another Doctor. You have the right to secure the doctor of your preference, and in the instance of a bedridden status, see a doctor without 'privileges' or out-of-network while in a hospitalized setting.

4. Do you understand your rights as a patient?

I think this presentation could really take off with a lot of regular people with no medical background. I often say we were in-prisoned in our first hospital, why not get a medical version of the Miranda?

I could paint it. Patient as prisoner...what do you think?

Speaking of paint I have two more walls lined up and one is quite big so I sort of want to do a Picasso's Guernica meets David's Death of Marat set in the modern American Medical World. For those of you who know DC, this is the wall of the BP station by Politics and Prose around the 5000 block. This is an excellent location to get the word out big time.

I also CC'd This to the filmaker Jamie Crausman as he is working with others on the documentary on the Patient's Rights Medical Advocacy Mural Project.

I look forward to your comments.

Thanks,
Regina Holliday